Once again, I’m hosting my Tea Party For M.E. for people with M.E. and their family and friends. I strongly believe that we need and deserve as dedicated day of fundraising, but also a day where we can come together to mark and celebrate our resilience and our strength in the face of this cruel…
#MillionsMissing 2023 will be held at the Washington Monument on the National Mall in Washington, DC on May 12th that will feature an art installation and press conference. This year, #MEAction in partnership with Body Politic, will host #MillionsMissing 2023 to demand bold, urgent governmental action for the millions of people living with myalgic encephalomyelitis…
The purpose of this Notice of Funding Opportunity (NOFO) is to promote basic research to better understand the mechanisms underlying viral invasion of the central nervous system (CNS), virus- and/or host immune-mediated neuropathogenesis, and the associated clinical manifestations for emerging and re-emerging neurotropic viruses. Source: RFA-AI-23-028: Fundamental Research to Understand the Mechanisms of Neurotropic Virus-mediated…
The National Cancer Institute, part of the National Institutes of Health (NIH), has helped launch a phase 3 randomized clinical trial (NCT05633602) of a two-drug combination to treat patients with advanced non-small cell lung cancer (NSCLC). Called the Pragmatica-Lung Study (or S2302), this is one of the first NCI-supported clinical trials to use a trial…
Kashyap Patel, MD, CEO of Carolina Blood and Cancer Care Associates, sees something different in his practice since the onset of the COVID-19 pandemic—not just with cancer care, but with cancer itself. Since March 2020, the longtime community oncologist has seen multiple patients in his Rock Hill, South Carolina, based-clinic with cholangiocarcinoma, and these patients…
A woman is fighting for her life in hospital after doctors refused to let her see specialists that may be able to help her. She lives with severe chronic illness – myalgic encephalomyelitis (ME) and Ehlers-Danlos syndromes (EDS). So, her husband has issued a desperate cry for help on her behalf. Sadly, her story will…